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Patient and Public Involvement

Developing your proposal

Research is the key to finding answers to those things that are unknown and can result in new treatments, better care, improved patient quality of life and prolonging of patient life. 

Participation doesn’t always necessarily mean that you have to take part in a research study. People with personal experience of healthcare, or a carer of someone else who has, are the ones who are best placed to comment on what research is needed and how that research should be done. 

Talking to patients and members of the public about a research idea at an early stage helps ensure that the idea relates to something that is important and relevant to patients. 

There is a variety of other ways to get involved in research, including: 

  • participating in discussions and workshops;
  • reading, writing and reviewing patient information leaflets or other research  materials;
  • being a member of a project advisory or steering group;
  • helping to design research projects;
  • supporting other patients who are taking part in a research study;
  • sharing the research findings with other patients, for example, through patients’ forums or newsletters.


There are several reasons why you can benefit from being actively involved in the research process: 

  • you will have your say in research;
  • you will help initiate research that is important to you;
  • you will learn more about research;
  • you will have opportunities to meet new people – researchers and other patients and members of the public;
  • you will gain confidence and new skills


For more information or to register your interest, send your name, address and telephone number to:

dhft.patientexperience@nhs.net (Patient Experience Team)  

dhft.RandDadmin@nhs.net (Research & Development Department)

 Additional Info 

  • INVOLVE (National Advisory Group for Patient and Public Involvement in Research):


  • East Midlands Academic Health Science Network, Institute of Mental Health:

Email: shahnaz.aziz@nottingham.ac.uk

Website: http://www.emahsn.org.uk/public-involvement/

  • Patient Research Ambassador Initiative:

For more information and for a registration form go to New Patient Research Ambassador Initiative