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Home Dialysis Stories

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When the time came for my dialysis to begin i really didn't know what to expect.

 I arrived on the renal unit and was asked to go down to Silver Bay, there are quite a few bays all various colours, each bay has 4 positions, I was shown to mine, it was now the word dialysis wasn't just a word it was for real and it was now i met some amazing people.

 The person in charge of Silver Bay I now know as Chris and it was he that became my mentor, when it was my turn to for dialysis Chris explained that my first session would be two hours, my second three and thereafter four hours three times per week.

After a while of being shown how to put needles in how the machine worked my husband and I were asked if we had considered having dialysis at home, again all was explained, it was now the hard work began, my husband took it on to learn how to line and prime I was shown how to access the sights for needling, we were taught everything.

 After about six months were at home, everyone engineers, nursing staff all helped us set up at home, and the support still continued. I have now been at home about six weeks really enjoying the freedom of not having to go to hospital three 

 I dialyze at home five times per week for three hours per day and I can honestly say I have a new lease of life.

 You are supported 24 x 7from everyone, I'm not saying everything is rosy and yes you do get problems but you just deal with it, don't panic would be my advice.

 In finishing I would like to say thank you to all the staff for their ongoing support and for giving me my independence I wouldn't change a thing the cliché is I suppose is if I can do it so can you.

 Yours

 Brenda Griffin

I was diagnosed with kidney failure in August 2010 and after numerous clinic visits I was told that I will be starting dialysis on the 23rd April 2012

My first day was quite daunting as I reported to the Silver Team Unit where I was met by Chris (who I knew from Prehab Clinic) and was introduced to Tina and Geoff. The cannulation (needling) was not as bad as I thought it would be and so I started my first day on dialysis. I attended the unit for three months in which I went through a comprehensive training session learning how to line and prime, trouble shooting problems and how to self cannulate myself. Instruction was given by Geoff how to administer EPO and Iron whilst you are on dialysis and after completing my training period and signed off by Geoff Carol informed me that I will be going home on the 30th July 2012. :( sad

The first week at home was fine as my nurse Geoff attended every day and made observations whilst I was having treatment and explained and demonstrated any problems that may occur during dialysis. After the first two weeks the machine started playing up with various alarms occurring how I got through treatment some days is beyond me but the excellent training by Chris and his team and also having the red bible at hand made you feel confident enough to get through the problems, after all you are only a phone call away. 

Having treatment five times a week three hour session) took some getting used to compared to three times (four hour session) in hospital but the advantage is that you can do it at your own convenience without being tied to a fixed time, this gives you the freedom to have mornings or afternoons off at your leisure. Taking your own bloods is an advantage as this saves you having to go to the hospital as the bloods are collected by the nurse on their monthly visit. 

I would certainly recommend having dialysis at home but I believe a positive and confident attitude is required.

 would like to thank the Consultants and Doctors for their reassurances prior to me going on dialysis not forgetting Carol, Chris, Tina, Geoff and Bernan for their help during my training period and the home follow ups.